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Accompaniment and palliative care: an exciting journey the pages of mind that you must live!

We want to share our blog content on a project we hold dear: the book - testimony ART Remember that you must live.

As you may recall, we talked about at the official presentation a year ago.

Today we take you on a real journey through the pages of this addressing sensitive issues such as cancer, serious illness, palliative care, hospice ... and bereavement and its processing. Remember that you must live is testimony to the extraordinary story of Marilu Barontini, a member of the ART, and at the same time, a "manual" to accompany and mourning played dall’Associazione.

Crediamo che l’esperienza della lotta contro il cancro e l’accompagnamento fino all’ultima battaglia di Marilù narrati in questo libro, possano essere un valido aiuto per chi affronta oggi la malattia grave e inguaribile , in prima persona o a fianco ad una persona cara, c ome per chi si impegna, come professionista o volontario di accompagnamento, nelle cure palliative, in hospice, all’interno di reparti ospedalieri…

L'équipe del Reparto Dialisi e Nefrologia Hospital of Piacenza. Photos from the book
Remember that you must live

We join in the words of the same Marilu , written to the end of his diary in the book: If these

pages will be read one day by someone, I would like it were a patient to instill hope, or a doctor, because they always stop to think before you speak to those affected by cancer, so as to mitigate the duty to inform a encouragement to hope. As for any other readers for their good fortune in good health, I like to imagine motivated by a deep desire Solidarity and ready to spread their arms to those affected by suffering.

then begin our trip with pages written by Amanda Castle, founder of the Association for Research on Paulo Parra Terminals - ART, author of file ruoge driving the reader to discover the history of Marilu, in the first chapter of the book.

" I almost start like in fairy tales, Once upon a time ... or as a love letter, my love, because, in all cases, what we are per raccontare è nello stesso tempo una fiaba e una storia d'amore che avremmo voluto durasse ancora.

La conoscenza personale, il rapporto di sostegno, il percorso fatto insieme a Marilù si è trasformato progressivamente in una relazione di amicizia e di affetto vero che si è poi consolidata ed estesa alla cerchia stretta dei familiari.

Amanda Castello e Marilù Barontini
foto tratta dal libro Ricordati che devi Vivere

Questa storia è un pezzo di vita tessuto con gioie e dolori, speranze e delusioni, risi e tears, faith and doubt, anger and peace ... the frame of the emotions of every human being, he has lived through the GEU as Marilu was defined in his story, the Great Human Being.

was the end of 1999 that I heard for the first time of what would become over the years, Little Big Woman (...)

A woman fragile and strong, sweet and sharp and hungry for affection, but reluctant to show it, with a great lack of confidence in his abilities, but with the intuition of the infinite possibilities, an eagle dares not take the flight and hovering in the skies. (...) A woman of faith, a Warrior of Light Paulo Coelho would say. My friend, my protege.

(...) I still remember the first time he came to me in May 2000. He took time to decide whether to take the step or not. Marilu did not like to ask. He felt diminished in soliciting the help of others. In her worldview, she had to give support. He had done this all his life, at home with his mother and aunt, then with her husband. Tense face and clenched fists, a combination of nerves, a time bomb ready to explode, walked into my studio.

immediately attacked me and caused me to pass a close examination to which I willingly underwent understanding the distress that the contradictions in which he lived and struggled. I had before me a person split in two: (...) eager to trust, but more can not be as suspicious and proud as a beast.

(...) At the end of the meeting, I was "promoted" and Marilu school teacher told me she would return.

was the beginning of our story and our history of love ... "



who want to continue to discover and read "Remember that you must live" can do it on pages ART where you can also order one or more copies on-line .

Stay tuned on this blog and on Facebook ...
continue our journey into a book!

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A book, a meeting, two associations that work in synergy, three women involved in palliative care

We want to continue to tell the interesting meeting with Dr. Lisa Galli , you nutosi at the Library of Borgonovo, last Friday. The meeting was organized by 'Association Paulo Parra for Research on terminality ART non-profit organization and the Association of Hospice Friends Borgonovo non-profit organization. Two groups of volunteers involved in palliative care who have decided to strengthen their partnership to strengthen the important work many of culture, information and training that take place in the area.

We want to understand what are the so palliative care, raising public awareness about the nature of the structures hospice palliative home care and assistance . Among the various initiatives that they see at times combined these two non-profit, in the afternoon with the author of the book When life changes color .


Itala Orlando, Project Manager of Hospice Borgonovo VT after explaining the work they do in the hospice Borgonovo, the first in the province of Piacenza, whose name A home for treatment palliative perfectly illustrates the spirit of professional and human hospice, presents Dr. Lisa Galli: "The author of this important work and psycho-oncology at the Division of Hematology, Policlinico di Modena and by the year helps the patients and their families cope with the psychological aspects of illness. "


The moderation of the evening is left to the expertise of Dr. Amanda Castle, founder of ' Paulo Parra Association for Research on terminality .


His first thought is the concept of time, once it escapes, once believed to have no more time is often wasted because it is believed that what remains is worth more. The underestimates the sick person, but also their loved ones. Galli asks Lisa to talk about it.


"It 's important to help the ill person to take possession of the time," says Lisa. "This time becomes a time regained. We, the professionals, we can help the patient, family and friends to rediscover a time I would call hidden. It 's the time that the patient could not have and now you can exploit. The disease appears to EP rmettere di vedere e progettare il futuro. Occorre partire dal presente per capire che comunq ue si può andare avanti e che si può credere in un domani.”

Itala Orlando, Lisa Galli e Amanda Castello

Le parole di Lisa fluiscono con professionalità e tenerezza. Ad ogni concetto Lisa associa degli esempi di vita quotidiana dei suoi malati e dei loro cari. Sono storie di vita che si snodano. Qui, non si parla di statistiche, ma di persone che hanno un nome, un’età, una storia. Lisa si intenerisce quando si sofferma su alcuni casi.

Le domande Amanda and his comments, sometimes full of passion, reflected the experience of a professional and a woman committed to fighting for years for the cause of palliative care.

's comments Itala rely on the battles that moved the hospice, on the need to make known his mission and the essential support of volunteers from the association.
Three women, three fighters for the defense of the patient's right not to suffer, to preserve his dignity, to live as a person until the end of his earthly existence.

Three women who capture the public's attention. The room is full. There people standing. The focus is sustained. The sun at the end of the day creates a magical atmosphere.




Lisa speaks of " resilience, which in psychology is defined as the ability to turn a critical event and destabilizing the point of departure for a successful reorganization of their lives. Develop means to discover a new way of being in the midst of chaos unleashed by sudden events, such as illness. Resilience is the ability to trace each time the boat of life. "Lisa Galli said that" we should teach our children this resilience, because we prepare them well to acquire a positive attitude to face life's challenges and be able to overcome them. "


Helping the patient to overcome these tests is painful task of well-trained professionals, convinced that their commitment can not be reduced to a technical report professional without human involvement.

Amanda Castle points out that in schools of nursing and medicine, it is recommended that future nurses and doctors to keep the famous "safe distance" which in practice is impossible and undesirable. The important thing is to accept to get involved in the report, but to find out. It is not possible, nor healthy, to confuse the roles. E 'fundamental empathize, but never identify the person that you have and want to help.

Lisa Galli agrees and explains that, as a psycho-oncologist, it loses its status of being a woman and mother, and that these different parts of her person can not be separated or eliminate but rather to enrich the relationship . Empathy is essential that everyone speak in the ratio of aid.


Lisa said, provoking many emotions in the audience, an episode in its third pregnancy. The case of a young ill, that due to the severity of his illness would not mai potuto sposarsi e diventare madre. Il pancione di Lisa era molto visibile. La ragazza chiese a Lisa se poteva toccare la sua pancia. Non aveva mai toccato la pancia di una donna in attesa. Lisa accettò e fu un momento di una comunicazione estremamente delicata ed unica che coinvolse la psico-oncologa e la giovane malata. Una comunicazione creatasi sul filo dell’essere donna che ha sviluppato un clima di fiducia tra due donne, una che stava per dare la vita e l’altra che la stava perdendo.

Itala Orlando interviene sottolineando il suo apprezzamento per la testimonianza portata, nella quale Itala si riconosce.

Lisa parla dei curanti, malati, familiari, nell’ambiente di cura as nodes that make up a large fishing net.

says, "We are like nodes on a network, the networks that you see on fishing vessels: large, robust, in some parts of the meshes of the time wear loose, full of knots used to hold it together, tear-resistant of fish catch.


nodes all look the same, but in reality are different. Some seem indestructible, while others look at them and realize they need to be repaired, while others still, you wonder how long will resist all tangled currents of the sea. In the professional world, I live in the intertwining delle relazioni umane è simile a quella rete. Ogni persona è un “nodo e non c’è nodo, né persona che non sia fondamentale.”

Ricordiamo che il libro “ Quando la vita cambia colore – Reagire al dolore e alla malattia ” di Lisa Galli , è pubblicato da Mondadori e si trova in tutte le librerie.


Ve ne parleremo ancora prossimamente.

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Telling the disease and palliative care: When life changes color

Itala Orlando, Lisa Galli e Amanda Castello

One of the stages of the journey that the A ssociazione Paulo Parra for Research on terminality intend to travel to disseminate Lisa Galli's book, he saw the main Borgonovo (PC). We are confident that the delicacy of When life changes color will soon reach other realities with which the ART works for some time as the hospice of Borgo Val di Taro and Bicester, contributing thus to the awareness of the territory .

Great participation for the presentation of the book by Lisa Galli , When life changes color , that the 'Friends Association Hospice of Borgonovo el ' ART organized last Friday at the Public Library of Borgonovo (PC).

An elegant and intimate framework has hosted a major initiative that has enabled various organizations working in the same industry to meet, thus creating a strong synergy in authorities.


entrance to a nice dinner, chaired by Sonia Galli della Libreri to Fahrenheit Piacenza, was set up with the volumes of the author.


At 17.30, the Head of Culture and Social Services of the City of Borgonovo, dr. Francesco Cravedi , greeted the audience with some interesting reflections on the time of loss and illness and left the floor to d r.ssa Itala Orlando, Project Manager of Hospice Borgonovo, c he welcomed explaining the value of the initiative.

very clearly presented Dr. Lisa Galli, known at the X National Day against the unnecessary suffering of incurable Person, Organized by the November 11, 2009 in Piacenza on the Day of San Martino, patron saint of palliative care.

The meeting was a connubbio of humanity and professionalism, where the questions asked by Dr. Amanda Castle , moderator of the evening with the author and founder of ART, was born a pleasant exchange that involved and excited a large and attentive audience.


Among those present, many volunteers of the Friends of the Hospice, nurses and doctors, who have shared their experience and brought to the attention of all its thinking.

Please note that When life changes color is available in the Public Library of Borgonovo (PC) and is available in all libraries.

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An essential book to read: when life changes color

"nacosta There is a force within us that makes us
also absorb the blows of the most violent ,
change the way we to see things
back on the boat and the life. "

by When life changes color
of Lisa Galli

An appointment that can not miss !

We invite you to
presentazione di un libro speciale

Quando la vita cambia colore
Mondadori

di Lisa Galli


Venerdi 9 Aprile 2010
ore 17.30

a Borgonovo Val Tidone
in provincia di Piacenza


presso la Biblioteca Comunale di Borgonovo V.T.
Piazza Garibaldi, 2

Ingresso gratuito

followed by a refreshment with the author and the authorities

With gentleness and respect, Dr. Lisa Galli speaks of the "bolt from the blue" that falls on a person and his family at the time of diagnosis and confusing life itself. Gently tells the difficult day of a patient and loved ones, explaining the need to restore meaning to life, despite evidence that the disease is. Tell us how can we help the patient to move from "passive person affected" to "active person can understand, process" ... and maybe even win.

The meeting will be introduced by Dr. Itala Orlando,
Project Manager of Hospice Borgonovo VT

and moderated by Dr. Amanda Castle , founder of a
Paulo Parra Association for Research on terminality , ART onlus

you there!